Tuesday, December 28, 2010

The good the bad the..... excellent!

Nope no ugly to place at the end of that ever so popular quote. I only have one bad report followed up by an excellent! First the good: No spending time in the hole (for those who don't know the hole is the hospital) for me over winter break like I had planned!! That will be saved for summer break which I prefer because I only have a month off for winter and 4 months off for summer so I have plenty more time to waste there! The bad isn't all THAT bad but it still sucks. After a week of steroids and antibiotics my PFT's aren't up enough and I already knew this was coming because I am still exhausted, coughing up to much, and there is a sharp pain when I take in deep breathes in my left lung... So a 3 maybe 4 week round iv's for me. What a way to start off my spring semester... yippie! Oh and to top things off I have a sore throat which means a potential cold! On the bright side that does mean that I will be healthy as can be once school starts! Now for the main event: The excellent! After 3 years of putting it off I finally went to do my blood glucose test because I promised the doctors I would get it done while I was in town and they said I wasn't allowed to take my steroid until I did the test because it would mess with the numbers so that next morning off I went. The CF coordinator called today with my test results and to everybody's amazement my numbers came back normal! No diabetes as of yet for me!! CFRD can kiss my booty. I told them I was fine, but I had weird blood sugar problems growing up and my pft's have been kind of stuck so they figured that is what it was but nope not yet. So far, diabetes is one thing I have been able to put off acquiring. I say that like it's all up to me when I get it, but I would like to think there was something I was doing right that is postponing it... wouldn't you?

I never did get the chance to wish everyone a Merry Christmas, so even though I am a little to late it's the thought that counts.... Merry Christmas! I hope everyone had a time full of family, friends, food and blessings. I know I did. It was a bitter sweet year because it was the last in my Grandparents house but all the cousins got together and had a great time! Tacos and a program on Christmas Eve then breakfast and dinner at Grandmas Christmas. I even had a day of feeling okay! Now it's time to start a new year. I can't wait to see what 2011 holds for me. Hopefully it's full of more good then bad! Vertex is hoping for 2011 to be their year with new drugs.... cross your fingers everyone!

Sierra and her BF Axl at our family Christmas party!

White elephant game for the Christmas party

EARLY Christmas morning at grandmas

Dancing in "spanish mode" with hugh and Buzz

Our Christmas Eve pajamas (:

Wednesday, December 15, 2010

My favorite day of the week: Thankful Thursday.

It has been such a great weekend and I am so excited to sit down and share what I have been blessed with and encourage everyone else reading this to sit down and make a list as well!! It makes you feel so amazing to see everything you have.

1. I know I did this last week but I have to again. My roomies, my best friends, the girls that make me smile!! We had our very first Christmas as roomies this year... we couldn't afford a tree, not even a little charlie brown tree so I took the liberty of printing one out and taping it on our tv so we could put our presents under it! Since we are poor college students we decide to do a secret santa so that we didn't have to buy for everyone just one person. We had so much fun going around in a circle opening our presents. Everyone loved everything. We were like a little family. I even got a little bit of snow that night which is what I'd been wishing for all week!!

2. I am so grateful for my doctors. I know I know this is so cleshay for me but really.... I've been so tired lately, coughing a lot more, and my lungs just feel heavy and I am heading home for Christmas so I wouldn't be here in reno for the cf clinic I had scheduled so my amazing doctors back in vegas squeezed me into a clinic last min. Sure it's at 7:45 in the morning but I need it and they made it happen. Now I can guarantee feeling great for Spring semester.

3. I love hulu! In our apartment we can't afford cable and we have an older tv so we need a converter box to get just basic television on it, but we don't have the money for that right now so we watch all our favorite tv shows this year on hulu. We don't miss a beat! I know stupid but it's a great way to relax when you need a break from hw or you are eating your lunch. Recently,we got the most excited for the Victoria Secret fashion show being on there for us to watch!

4. Glasses or Contacts. I get the choice between the two. Some days my eyes are tired and just don't want contacts, but other days I hate wearing my glasses. I am thankful for the option of which one I would rather wear when.

5. My roommates not being into video games! Between my dad and brother that is all that has been on the tv since I arrived home last night, and it's driving me crazy! I am so glad one of the girls isn't into a game system.

6. My puppy. I miss her so much when I am gone at school! My daddy said last night when he said I was coming home she got all excited and was wagging her tail waiting for me. All morning she cuddled up under my blankey keeping me warm and snuggling with me. Now every time I sit on the couch she comes running up sit with me. She is by far the cutest, most amazing doggy ever!

Thursday, December 9, 2010

Thankful Thursday!!

Last week Mandi decided to bring back the Thankful Thursday for this wonderful holiday season. She had been inspired by a sermon they heard at church, and asked everyone, who wanted to, to participate in this with them. I have so much to be thankful for and I could never turn down the opportunity to show my appreciation for everything I have! If you would like to read Ronni and Mandi's Thankful Thursday they are over at "run sick boy run"

1. I am so grateful that I have been able further my education past high school. Not everyone is able to afford it and has to work after HS while talking classes or work until they have enough saved up to pay for classes.Last year I had an amazing aunt and uncle that cosigned on a loan to allow me to take out enough money to move up to reno and take classes and University of Nevada.This year was a little harder on money, but my parents wanted me to be happy and if going to school in Reno meant my happiness they would find a way to make that possible and we did! I am able to better myself and plan for my future. I am so blessed to be sitting in my apartment right now taking a break from studying for my finals I have today. I know you're thinking how can she say she is blessed to take finals?! Don't worry I do hate them very much, but these finals will just show how much I have learned and grown this past semester and that is what I am thankful for.

2. I am incredibly thankful for medical advances we have today and the ones we have to look forward to in the future. It is because of all the hard working scientist that I owe the amazing quality of life.... heck my life to. I wouldn't be here today without them!

3. I am thankful for airplanes. Instead of driving 9 hours through the middle of nowhere Nevada desert to get home for the holidays coming up I get to hop on a plane and be there in an hour!! I even get complimentary peanuts/pretzels and a Dr. Pepper. What more can a girl ask for?

4. I am so blessed to live in a time where the world wide web is growing and technology is getting better! Because of this there is such an amazing support system for us CFers online! I don't know what I did before them. Any fear or concern you have they are their to give advice and to tell you that you are not alone... with any good numbers or celebrations they are there to give you a pat on the back on the tell you good job. They are also so somebody who understands what you are going through and are willing to hold you accountable for working out and doing your treatments. The online CF community is so large and so strong. I am so grateful to have them.

5. Last but not least I am grateful for my friends. They take such good care of me. They give me crap when I'm making stupid mistakes, they drive me to doctors appointments and sit with me, they sit in the emergency waiting room with me for hours, they make me eat when I'm sick, won't let me leave without a treatment, put up with my mondo boxes of meds that take up half the top shelf of our fridge and my meds that take up a shelf in the kitchen. They don't see my ugly port bump, and are so immune to my cough that they don't even notice it unless I am sick and it's increased. They have learned to sleep even with the noises my oxygen makes, like laughing at me when I talk with my vest on, and they always know how to keep a smile on my face. I love my friends. They are like family to me.

I can't wait until next week to pick another 5 things I am thankful for. I have so many!!