Saturday, March 3, 2012

This time last year....

This time last year I was 2 days into a hospital admission in Reno. My very first without my parents. With blue lips when I coughed & blue finger nails from my 86% oxygen sats and scared to death being in a HUGE foreign hospital.

This time last year my PFT's (lung function) were below 30% & I was sicker then I'd ever been before. I was on continues oxygen & hoping that my Mom would be able to find a way up to Reno to be with me.

This time last year my amazing social worker & Disablities Resource Center advisor were helping me let my teachers know I wouldn't be there for midterms, reminding me that this was out of my control & that if I need to withdraw from the semester they'd be there to help me through the process, every step of the way.

Today my PFT's are up 24%, higher than they've been in years! Today I made the deans list for my 3.5 gpa at UNLV!

& Today I wanted to express my gratitude to all those that were there for me this past year. I'm so grateful for the health I've been blessed with & all those that supported me as I worked harder then ever!

* My WONDERFUL roommates & 2 of my best friends that helped in every way they could. Who took time out of work & midterms to visit me in the hospital & who never once complained about taking me to doctors appointments, hospitals & about all my medications taking up the fridge space.

* The support from the CF community has been more of a blessing then I could of ever imagnied it would be when I first joined Cystic Life, with people that know what you're going through things don't seem quit as tough.

* I've been blessed with the most amazing family. The support & love they've showed me surpasses all! I had family friends call & check up on me, I had aunts & uncles pull together money to get my Mom a plane ticket up to Reno. My mom never once leaving the hospital & pulling my oxygen along as we went on walks through the hospial & I had cousins skyping me.... even from the bathtub, you know who you are ;)

* I am also so gratful to my social worker, Daniel who did so much for me, trying to make my load lighter & for my doctor here in vegas who never once gave up on me this last year as we struggled to figure out what was causing all these problems & who talked to me about what he wanted to do, but always listned to my concerns & opinions. My doctor, who never once stopped fighting till we got me back up to base line, when many others at the CF office seemed to have given up.

Thank you to everyone who has cheered me on & helped get me to where I am today! I love my life & wouldn't trade it, or anyone in it, for the world!


  1. I was SO happy when I saw your Facebook post! It seems like you are thriving this year. :) I hope that the DF508 drug can come out soon and get you even better!!!

    1. Thank you so much Cindy!!! I feel like 2012 is gonna be my year (: Before my round of IV's in Feb it was the first time I was able to go almost 5 months without IV's... I couldn't believe it!

      BTW so excited about meeting with clinic to talk about Kalydeco! I'm so stinkin happy for you!